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Beautiful, beautiful language...
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The US's future: The United States of Giiead
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You never change things by fighting the existing reality.
To change something, build a new model that makes the old model obsolete.
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Carpal Tunnel
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Carpal Tunnel
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Glutes are going but still work, but I never had much of an ass. Quads almost gone, calf muscles useless, whatever that muscle is that hurts when you get shin splints still works. I can barely wiggle my toes so those muscles are gone. Hamstrings still work a little but all the hip and pelvic girdle muscles are mostly shot, that's why I can't pick up my feet, like to put on the brakes or step up on a curb. Spinal muscles are unaffected and everything above my hips works fine. I can't stand unsupported for more than a few minutes, but with something to lean against like a kitchen counter or a fence post I can stand for an hour or so in a pinch. Often do while gossiping with neighbors on my walks or cooking.

Y'know when the doctor taps on your knee with that little rubber hammer? How your leg jerks? Mine doesn't. Doctors get the funniest looks on their faces.

Exercise doesn't help because the muscles aren't just atrophied from lack of use, they've turned into something that isn't muscle at all.
On the plus side I can't get leg cramps anymore because those muscles aren't muscles anymore. They can't contract.

A certain amount of overall weakness is caused by my inability to do much of anything without falling down. I'm looking at a manual chair as a sort of portable gym to regain some strength I've lost in my upper body. I'm pretty excited about getting started with it.


Good coffee, good weed, and time on my hands...
Greger #316878 10/18/19 01:58 AM
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It's the Despair Quotient!
Carpal Tunnel
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It's the Despair Quotient!
Carpal Tunnel
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Originally Posted By: Greger
Glutes are going but still work, but I never had much of an ass. Quads almost gone, calf muscles useless, whatever that muscle is that hurts when you get shin splints still works. I can barely wiggle my toes so those muscles are gone. Hamstrings still work a little but all the hip and pelvic girdle muscles are mostly shot, that's why I can't pick up my feet, like to put on the brakes or step up on a curb. Spinal muscles are unaffected and everything above my hips works fine. I can't stand unsupported for more than a few minutes, but with something to lean against like a kitchen counter or a fence post I can stand for an hour or so in a pinch. Often do while gossiping with neighbors on my walks or cooking.

Y'know when the doctor taps on your knee with that little rubber hammer? How your leg jerks? Mine doesn't. Doctors get the funniest looks on their faces.

Exercise doesn't help because the muscles aren't just atrophied from lack of use, they've turned into something that isn't muscle at all.
On the plus side I can't get leg cramps anymore because those muscles aren't muscles anymore. They can't contract.

A certain amount of overall weakness is caused by my inability to do much of anything without falling down. I'm looking at a manual chair as a sort of portable gym to regain some strength I've lost in my upper body. I'm pretty excited about getting started with it.


That is unusual. Not in the ordinary sense, unusual to me because I am not a doctor, thus I don't know what to make of it.
I don't want to say MS because you aren't reporting all the symptoms of MS, but it is some kind of dystrophy, just not neurological.

Use the manual chair for exercise as long as you remember to also view it as your mobility, too.

That doesn't make sense until your doctor tells you to lose the manual chair because you blew out a rotator cuff. Then it makes sense.
If you let it make sense now instead, you might not blow out your rotator cuff.


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Carpal Tunnel
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It's muscular dystrophy. Oculopharyngeal muscular dystrophy(OPMD). I had both eyelids removed some years back because I couldn't open my eyes, then for months I couldn't close my eyes. I've got a dead spot in my esophagus too, so I have to eat very carefully or I'll choke. It's a little genetic gift from some French Canadian ancestors. It's quite rare and I just happen to have a very severe case of it. Nothing at all to be done about it, no way to have prevented it, so I accept my fate and make the best of it. You can laugh or you can cry, I choose to laugh. All those things I can't do anymore? Didn't want to do them anyway.

I don't usually have any pain either, neck is fused and doesn't hurt anymore. Lower back was fused until I fell and broke it apart, in a little while it'll grow back together and the pain will go away. For now it's just raw bloody bone against raw bloody bone grinding, grinding, grinding, with every move I make.

Pain...it builds character and makes you a better person. Embrace it, accept it, learn to live with it. I have a bottle full of opioids. I won't take them.

That's degenerative disk disease, unrelated to the OPMD, more related to extreme sports and wrecking a bunch of cars. Some folks consider their bodies a temple, I treated mine like a demolition derby.


Good coffee, good weed, and time on my hands...
Greger #316920 10/19/19 02:21 AM
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>OPMD

That sucks. But the way I see it, nobody gets out of here alive. I'm trying to figure out why I have afferent peripheral neuropathy. My MS doc says it's not a symptom of MS. There are a few recent papers that connect it to wheat sensitivity, of all things. Strange, but true. But there are probably 100 different causes for peripheral neuropathy. I am very fortunate that I have one of the painless types, and my motor nerves work fine. Some poor saps have it where they feel a constant stabbing pain. I'm just numb and I have no leg hair from mid-shins down. That is actually a symptom of having damaged or absent skin nerves. They stuck a bunch of needles in my legs and watched electrical signals travel up my leg nerves: Myelin is damaged. That's like having bare copper without insulation inside your romex.

BTW: I always take a shopping cart in the supermarket, even if I am getting one thing. Very nice walkers!

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Carpal Tunnel
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Carpal Tunnel
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They should leave one beside every handicap parking space! I can wobble in with my cane but it's always a bonus when there's a cart just waiting for me. I can't use those scooter things because I always buy too many groceries to fit in one.

It's odd that I don't have neuropathy, I'm diabetic so I probably should have it but there's no pain or numbness or anything. Feet are a bit too sensitive if you ask me. I've got a bum knee from wakeboarding and a hip I nearly ripped apart when a ski tip caught a bush while I was glade skiing in Utah. Liked to have left that leg up on the mountain while the rest of me headed down. But I can't be on my feet enough for those to ever be a problem.


Good coffee, good weed, and time on my hands...
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Aldi's market is interesting: It costs a quarter to get a cart from the row of carts by the door. When you are done with it, you can put it back in the row and get your quarter back. Very German! Everybody gets a quarter to be socially responsible. Leave it to us Americans, though. We buy a cart in the parking lot by giving the former user a quarter and wheeling it in.

It also allows for charity. You can just leave your cart in the parking lot and bums will take it back for the quarter.

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Carpal Tunnel
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Carpal Tunnel
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We don't have a lot of bums, it's usually neighborhood kids that offer to take your cart back for you. Since walking is a major concern for me I'm glad to give them the quarter.


Good coffee, good weed, and time on my hands...
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